We took Gabrielle for another visit at the CF Clinic today, this was our third visit this month. She is on day 9 of 14 with this round of Augmentin for her coughing and lung stuff. The doctors heard her cough and were concerned. The felt that the Augmentin should have already taken care of the bacteria in her lungs and reduced her cough back to her normal level. They told us that we need to call them if her cough has not returned to normal in the next couple days. They said there is a chance that there are some bacterial that the Augmentin is not working on.
The main concern that they have had from the beginning is her weight and nutrition. Since the beginning of this year it has become more of a focus. Gabrielle has not gained and maintained her weight since the first of the year. At her January 6th visit she weighed 18lbs 10oz today (2/24) she weighed 18lbs 14oz. Between these visits her weight has gone up and down like a roller coaster. Gabrielle’s appetite has also fluctuated mainly because she has been sick 3 times since the beginning of this year. Based on Gabrielle’s history with her weight, illnesses, appetite, reflux, and other things the doctors feel that she is heading in the direction of needing a G-tube (feeding tube) for additional feedings during the night. They began talking with us about this today and gave us some information to look over.
In an attempt to get Gabrielle to gain weight we have once again changed her formula. We are changing to Boost Kids Essentials 1.5. This formula has 45 calories per ounce. Her previous formula only had 30 calories per ounce, normal infant formula has 22 calories per ounce. We are on a trial basis for 2 weeks to see how it affects her. If she has a dramatic increase in weight and appetite we can delay any further discussion of the G-tube. However, if there is not a satisfactory change then we will continue to have discussions about the G-tube and will have to make a decision at some point.
If WE decide to allow Gabrielle to have a G-tube then there is another procedure to help reduce/control reflux that may need to be done at the same time.
Please pray for Gabrielle to finish recovering from this cough/lung stuff by Monday (3/1) and for her to have a great response to the new formula so we don’t have to continue the G-tube discussions.
In Christ,
Jeff, Ashley, and Gabrielle.
Wednesday, February 24, 2010
Tuesday, February 16, 2010
February 16, 2010
Gabrielle started another 14-day round of Augmentin today. This will be the second round in a month (last time was Jan 6-21). She has a been coughing, hacking, gagging, and draining since last Friday. We took her to the CF clinic Monday and saw the nurse practitioner and the dietitian. Since this is the second round of Augmentin there is a chance that if it does not work or if she gets sick again that she would be admitted to the hospital again for another round of IV antibiotics. We are scheduled to go back to the CF Clinic on Feb 24th to see the doctors and dietitian again.
Our prayer and desire is for this round of Augmentin to work and that Gabrielle does not get sick again for the rest of winter. However, we are also praying that God’s Will be done, even if that is frequent hospitalizations, in Gabrielle’s and our lives so we may bring glory to His name through her CF.
Jeff, Ashley, and Gabrielle
Our prayer and desire is for this round of Augmentin to work and that Gabrielle does not get sick again for the rest of winter. However, we are also praying that God’s Will be done, even if that is frequent hospitalizations, in Gabrielle’s and our lives so we may bring glory to His name through her CF.
Jeff, Ashley, and Gabrielle
Saturday, February 13, 2010
1st Birthday
WOW!!! How time flies. On Saturday, February 13 Gabrielle celebrated her 1st Birthday. Her party theme was Princess (because we all know that is what she is). She celebrated at the house with her grandparents (except Nana, she was sick), Aunt Valerie and some close friends.
We had a great time and she got some awesome presents including a swing for outside and a stroller for us to take to the park this summer and push her baby dolls. She got some other toys and of course clothes.
The cake was made by daddy. It was a strawberry cake with strawberry icing. To decorate it we put rubber ducks on it as this is her favorite animal. Gabrielle was not impressed with the idea of playing in her cake. Jeff and I had to make her put her fingers in the cake. She was more interested in the ducks on the cake.
Some milestones that Gabrielle has hit as she turned one are:
• Walking a few steps at a time
• Learning to say dog and pa
• Identifying her nose and belly
We had a great time and she got some awesome presents including a swing for outside and a stroller for us to take to the park this summer and push her baby dolls. She got some other toys and of course clothes.
The cake was made by daddy. It was a strawberry cake with strawberry icing. To decorate it we put rubber ducks on it as this is her favorite animal. Gabrielle was not impressed with the idea of playing in her cake. Jeff and I had to make her put her fingers in the cake. She was more interested in the ducks on the cake.
Some milestones that Gabrielle has hit as she turned one are:
• Walking a few steps at a time
• Learning to say dog and pa
• Identifying her nose and belly
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